Parenteral Nutrition Down Under (PNDU) is a self-funded, not-for-profit support group for consumers and carers in Australia and New Zealand on Parenteral Nutrition (PN).
PN is food in liquid form infused intravenously by pump into a vein close to the heart. This is needed when it is not possible to eat regular food due to a problem with the digestive system, called Intestinal Failure (IF). The nutrients are in a bag of sterile solution and all connections and procedures must be aseptic, to minimise bloodstream infection risk.
After training to manage their PN themselves (or by their parents/carers), most people requiring long term PN leave hospital to continue their therapy at home - Home Parenteral Nutrition (HPN). The number of people in this part of the world on HPN is small - approximately 215 children and adults. IF is usually the cause of consumers ending up on this life-support therapy and it encompasses a wide range of congenital problems and digestive diseases including; total Hirschsprung's Disease, Gastroparesis, Short Bowel Syndrome, Crohn's Disease, as well as surgical and radiation side effects, amongst others. Many of those on HPN also have small or large bowel stomas.
With HPN being a very complex and highly specialised life-support therapy, not knowing anyone else on HPN can be quite isolating and challenging. PNDU was established in early 2009 by a consumer passionate about support, best practice and equality for all HPN consumers. As a group our motto is to 'support, research and inform consumers, carers and providers of Parenteral Nutrition for Intestinal Failure'. We aim to do this through this website (which includes lots of information and tips to make life on HPN a little easier), our private and secure GoogleGroups email forum and Facebook group for Aussie and Kiwi HPNers and carers, our quarterly e-newsletter 'Drip Line', our brochures as well as consumer and carer meetings and social gatherings. We are also involved in various projects, groups and conferences to help raise awareness of HPN, as well as a NSW government-funded patient information brochure for in-hospital PN.
PNDU welcomes new members - consumers and carers, clinicians, industry representatives and others generally interested in IF and/or PN. And please pass our information on to any Aussie or Kiwi HPN patients you may know.