This is Matisse's pick for kids old enough to use a computer (or comprehend while mum does the mouse work). The Starlight Children's Foundation in Auckland, New Zealand, have a very cool interactive online program for kids to perform an X-ray, MRI, CT, peripheral blood draw and more exciting stuff. This is a great way to prepare kids for scheduled procedures which otherwise might freak them out. Matisse loved it, I think the fact that she was in charge of the situation as opposed to someone else helped take away the fear when the real event occurred.
Make A Wish
When Matisse was a toddler, a member of the Make A Wish Foundation said to me to keep MAW in mind when Matisse was older. I replied "Oh no she is not dying, we can not apply for Make A Wish". First off I was totally in denial about Matisse's condition, knowing it is life threatening and accepting it are two different things. Secondly a child does not have to be dying to receive a wish. Sadly, their condition does need to be considered life-threatening. Matisse received her wish just months before her 7th birthday and it was AMAZING!
Bringing Hebe Home
The Kids Foundation is the welfare arm of IDFNZ and is responsible for caring for suspected or diagnosed PID children, teenagers and their families, as well as bone marrow transplant (BMT), liver transplant and now small bowel transplant children.
The Foundation offers members practical, emotional, medical and social support.
Mainly geared towards adults but their magazine has some good information.
Starship Children?s Health, located in central Auckland, is part of Auckland District Health Board, New Zealand's largest public healthcare provider.
A directory of departments and contacts at Starship.
Lots of general info here.
Still birth and new born death support.
Trauma and Stress Birth
A non-profit based organization founded in January 2008, made up of professional photographers nationwide that provide free photo sessions to our nation's Littlest Heroes.
A program that provides information and support to families, medical and allied health practitioners from all over the world that support children and young people diagnosed with Neuronal Intestinal Dysplasia (NID) more commonly known as Slow Transit Constipation (STC).
An organization that makes it possible for ordinary people and families, whose children suffer from Hirschsprung's Disease and other gastrointestinal motility disorders to support each other.
Support and information about digestive disorders in kids and teens.
Useful info added by parents of children with short gut syndrome.
Support for those on PN and Enteral Feeding.
Complex Child is a monthly online magazine written primarily by parents of children with special healthcare needs and disabilities.