The Australasian Society for Parenteral and Enteral Nutrition is a multidisciplinary society focusing on clinical nutrition. It was founded in 1974.
The membership includes physicians, surgeons, intensivists, dietitians, pharmacists, nurses and scientists.
ThriveRx is a US national infusion pharmacy providing nutritional support for individuals on PN and/or enteral feeds at home. Go to Clinical Corner and click to listen to webinars and other very interesting information.
International Alliance of Patient Organisations for Chronic Intestinal Failure and Home Artificial Nutrition. PNDU is a founding member of this alliance who's mission statement is to work together to promote the international sharing of information and resources to improve the quality of life of Home Artificial Nutrition patients.
The Kids Foundation is the welfare arm of IDFNZ (Immune Difficencies Foundation of New Zealand) and is responsible for caring for suspected or diagnosed PID children, teenagers and their families, as well as bone marrow transplant (BMT), liver and small bowel transplant children.
The Foundation offers members practical, emotional, medical and social support.
Young Ostomates United are a non-profit organisation that aims to encourage support and friendship between young people with a stoma, their families and friends and to provide resource material to both new and well-established ostomates.
IBD Support Australia is a free, non-profit public message board community set up in Australia primarily for Aussies with Inflammatory Bowel Diseases such as Crohn's Disease or Ulcerative Colitis, as well as their family members and friends.
Crohn's disease and ulcerative colitis affect more than 61,000 Australians. Crohn's & Colitis Australia support the Crohn's and colitis community with a focus on confidential support programs including education, advocacy, counselling, increasing awareness and generating and utilising funds for research.
The Bowel Group for Kids is an Australian based charity dedicated to providing emotional support to families of children born with Hirschsprung's disease, imperforate anus/ano-rectal malformations and associated conditions.
RVA is Australia's national organisation advocating for those who live with a rare disease. RVA provides a strong common voice to promote for health policy and a healthcare system that works for those with rare diseases. RVA works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare diseases in Australia. We are the voice of 2 million plus people affected by rare diseases throughout Australia and 70 million globally.
Rare disease day is an international project that began in Europe on 29 February 2008. It was originally intended to be celebrated just in leap years, but momentum and enthusiasm among rare disease support groups has meant the day is now an annual event, spreading rapidly around the globe.
An interactive online program for kids to perform an X-ray, MRI, CT, peripheral blood draw and more exciting stuff. A great way to prepare kids for scheduled procedures which otherwise might freak them out.
P.O.R.T. was formed in February 2006 by two families who have children who have died from Chronic Intestinal Pseudo-obstruction (C.I.P.S.) or are still suffering from this illness. The aim of the charity is to fund research into C.I.P.S. and raise public and professional awareness into this serious and sometimes fatal illness.
Winner of the 2011 Next Big Thing award in the USA, IV Pole Pals are fun decorations which click easily onto IV poles. This is the wholesale website for the products. A great way to add a bright note to a hospital stay or to stick on the IV pole at home.